Can I claim PIP if I have had a Stroke?

This guide provides insights into stroke and its potential impact on daily living and mobility. It explains how stroke might affect your ability to carry out everyday activities safely, effectively, accurately, and repeatedly.

People with stroke have a range of characteristics and will have different experiences. No two people are the same and common characteristics of stroke that may influence PIP claims include:

There are 3 types of strokes – Ischaemic Stroke, Haemorrhagic Stroke or Transient Ischaemic Attack

Ischaemic Stroke – caused by a blockage in the brain which cuts off the blood supply and kills brain cells. This can change the way that your body works, how you think, feel and communicate.

Haemorrhagic Stroke – this in caused by bleeding in or around the brain. This can change the way that your body works, how you think, feel and communicate. There are 2 types:

  • Intracerebral haemorrhage (ICH) is where blood leaks out of a blood vessel into the brain tissue, sometimes deep inside the brain. ICH is the most common type of haemorrhagic stroke, and around two-thirds of all haemorrhagic strokes are ICH.
  • Subarachnoid haemorrhage (SAH) is where blood leaks out of a blood vessel on the surface of the brain and gets into the protective layer of fluid surrounding the brain. This layer is known as the subarachnoid space, and it helps to cushion the brain from injury. SAH is the least common type of stroke, causing about one in 20 of all strokes.

 

Transient Ischaemic Attack (TIA or mini-stroke) – this is the same as a stroke, but the symptoms last a short time. You get stroke symptoms because a blood clot is blocking the blood supply to your brain. When the clot moves away the stroke symptoms stop.

  • You may have weakness in areas of your body, or the weakness may affect one side of your body
  • You may suffer from extreme tiredness or exhaustion which affects your ability to carry out daily activities and or mobility.
  • Struggles with speech as you may slur your words, become confused or struggle to find words and vocalise them.
  • Struggles with mobility due to weakness, fatigue etc
  • Find it difficult to do everyday activities due to weakness in dominant hand, general weakness, fatigue etc.

Other symptoms or issues related to stroke should also be considered during the claims process.

Daily Living Descriptors

The following sections outline the daily activities assessed in PIP claims and how stroke may affect them. This is not an exhaustive list; ensure all relevant details are included in your application.

Preparing Food

Stroke can impact how you prepare a simple meal in a variety of ways:

  • Challenges in following recipes or remembering steps may lead to incomplete meals.
  • You may struggle to use knives, peelers etc as you have weakness in your dominant hand
  • Preparing food makes you fatigued conversely you are too fatigued to prepare food
  • You need prompting and reminding to prepare food
  • You may struggle to concentrate and/or forget how to do things
  • You may need assistance or supervision because you need help to relearn how to prepare food as a result of your stroke

Eating and drinking

You may experience the following when eating and drinking:

  • Forgetting to eat/drink therefore require reminders and prompting
  • You may struggle to eat and drink due to stiffness in arms
  • Poor motor skills due to weakness in hand/s may require you to use adapted cutlery
  • You may struggle to chew and swallow food due to weakness in the face or oesophagus
  • You may not eat/drink enough due to pain, tiredness, lack of motivation, feeling less hungry, low mood etc
  • You may lose weight if you have reduced appetite and not eating enough may result in weight loss
  • If your balance has been affected, you may not be able to sit up straight which can affect swallowing
  • You may need assistance with eating from someone else
  • You may eat more slowly than you did previously due to your stroke

Managing Treatments

This descriptor examines how you manage health-related treatments, and you may find:

  • You may be anxious when taking medication and you require support to take it as you have problems swallowing it
  • You may need to be prompted and reminded when to take your medication
  • A dosette box may need to be used to remind you to take your medication
  • You may struggle to get your medication out of blister packs and/or bottles due to weakness, lack of grip etc in your hands
  • Think about any side effects from the medication you take
  • You may be going for physio, having speech therapy and/or occupational therapy as part of your treatment plan. This needs to be either in person, by phone or via video link in your own home

Washing and bathing

This looks at the ability of being able to bath or shower and what issues you may experience:

  • Supervision is needed because you struggle to wash yourself
  • You struggle to get in and out of the bath and need assistance from someone
  • You may be at greater risk of slipping and/or falling in the bath or shower due to your stroke
  • Grab rails are needed to prevent accidents because you struggle with spatial awareness, become dizzy or are unsteady due to your stroke
  • You are not able to wash parts of your body due to limitations of being

Using the toilet and managing incontinence

This descriptor is about the ability to use a toilet independently and to be able clean yourself afterwards and have no continence issues:

  • You have issues due to the physical changes as well as communication and vision changes can lead to incontinence as a result of the stroke
  • Changes to your thinking, memory and judgement can also lead to incontinence.
  • There may be issues for you to go to the toilet on your own because you struggle to complete the required steps
  • Aids need to be used because you struggle to get yourself on or off the toilet e.g. raised toilet seat, toilet frame, grab rail etc

Dressing and undressing

This looks at whether you can dress and undress yourself and choose appropriate clothing:

  • Are you able to use open/close fastenings on clothes?
  • You may need prompting/reminding to get dressed or undressed
  • You may need help from someone to help you get dressed/undressed because you struggle to get clothes on/off due to weakness in hands, arms and body
  • You are reminded that you need to change your clothes because they need washing due to low mood/lack of motivation
  • The type of clothing you wear has changed and is easier to put on and take off e.g. used to wear jeans but now wears tracksuit bottoms

Communicating Verbally

This descriptor looks at someone’s ability to verbally communicate and to be able to express and convey information and to be able to receive and understand information

  • You need support to understand complex information
  • You struggle to focus on conversations because you are distracted by something else
  • You struggle to vocalise, slur your words, find it difficult to find the words you want to say, do not speak clearly and others struggle to understand what you are saying
  • You tire easily when trying to communicate
  • You may need support to understand complex verbal information because you are too distracted by your focus on other issues to listen attentively.
  • Conversations may need to be broken down by so that you are able to process and understand the information
  • It may take longer to vocalise what you want to say

Reading and Understanding Signs, Symbols and Words

This relates to the ability to read and understand written or printed information

  • You may struggle to read if you have aphasia. Aphasia affects your ability to communicate. It has been reported that people who this condition can have problems with reading
  • You may struggle to understand what signs, symbols and numbers represent due to your stroke
  • You may read more slowly because you struggle to read and understand signs, symbols, words and numbers · You may need to take breaks from reading because you find reading tiring
  • It may take you longer to understand information

Mixing with other people

Due to your stroke, you may struggle socially and find it difficult due to:

  • Becoming anxious when meeting people
  • Being in an environment with people may deplete your social battery and this may make you very fatigued
  • You may become overwhelmed and need to leave the situation which you are in
  • You need someone with you to socialise

Managing money

This descriptor looks at if an autistic person can manage their money:

  • You may find it difficult to manage your money and struggle to budget as a result of your stroke
  • You struggle to read and understand your bank statements and you need support to do this
  • You are unable to manage your own finances, and you need help from someone to manage your money
  • When shopping, you struggle to understand financial transactions

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Mobility Descriptors

These evaluate how stroke may affect mobility related tasks. This is not an exhaustive list; ensure all relevant details are included in your application.

Planning and following a journey

Stroke may make planning and following a journey challenging:

  • You may struggle to plan or navigate an unfamiliar journey without support from someone else due to cognitive impairment as a result of your stroke
  • You may struggle to follow a journey due to memory problems
  • Having started your journey, you may not be able to finish your journey, and you have to return home due to being overwhelmed
  • You may have someone with you because of concerns relating to falling and the ability to cross roads safely, for example
  • You may not be able plan and follow a unfamiliar journey due to not being able to remember the journey instructions, take in information from bus/train timetables and/or struggling to read and retain travel information
  • You are not able to use public transport as a result of your stroke

Moving around

Moving around can affect people who have had a stroke in the following ways:

  • You may struggle to move around because you have weakness down one side of your body which makes walking difficult
  • You may need to use a walking frame, walking stick etc to help with your walking
  • You tire easily and need to stop and rest along your journey
  • There may be physical issues which may make walking difficult such as muscle tightness, your foot may have dropped, issues with balance, dizziness, vision problems along with numbness, pins and needles or vertigo, for example
  • The distance you can walk has reduced since your stroke
  • You may struggle to coordinate your walking and feel clumsy and slow.

Finally…

It is important that when you complete your PIP form, that you include how the stroke affects you in relation to each descriptor. Ensure that you give specific examples,

under each descriptor, where you have struggled due your stroke, where appropriate. It is important that you include any aids, adaptations or support/supervision that you need to help you complete each activity, where appropriate.

This information only covers stroke. If you have any other health conditions and/or disability you should include how they impact you under the relevant descriptors.

Remember to include copies of any relevant medical evidence, diagnosis letters, care plans etc to support your claim for PIP.

We hope you found this guide useful.
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