Can I claim PIP for Migraines?

Information about Migraines to help you claim PIP:

This guide provides insights into migraines and their potential impact on daily living and mobility. It explains how migraines might affect your ability to carry out everyday activities safely, effectively, accurately, and repeatedly.

Migraine is a condition which includes a headache, nausea and light sensitivity. A migraine has a number of symptoms of symptoms which cause a migraine attack.

Symptoms of a migraine attack

  • A severe headache which may be down one side of the head and may get worse if you move around
  • Nausea and/or vomiting
  • Sensitivity to light and/or noise
  • At the start of a migraine attack, you may get symptoms, such as, yawning a lot and feeling tired, food cravings/thirst, mood changes, stiff neck, urinating more.
  • Some people may get signs that they are about to get a migraine known as an aura. These auras can have symptoms, such as, sight issues – zig zag lines/flashing lights, tingling like pins and needles/numbness, dizziness, issues with speaking.

Types of Migraines:

Most auras are related to sight issues. This can include:

  • Blind spots
  • Blurred visions
  • Seeing coloured spots or lines
  • Seeing zig zag patterns

Other symptoms can include:

  • Numbness or tingling sensation like pins and needles in parts of your body – if you experience this you need to seek medical advice
  • Problems with speech
  • Feeling dizzy
  • Muscle weakness

Aura symptoms should not last more than an hour.

Migraine attacks can last varying amounts of time from a few hours to several days and can start with an aura before the headache arrives and finishes when the

headache goes. The number of migraine attacks someone might experience vary from every now and again to several times a week.

Women are more susceptible to migraine attacks than men due to hormonal changes during their period and/or perimenopause. Migraine attacks in women tend to improve during pregnancy or menopause. Migraine attacks seem to reduce as people get older.

Migraine with aura subtypes

Retinal (ocular) Migraine

This type of migraine is rare and usually affects only one eye. This can include flashes, sparkles, blind spots or even temporary sight loss. If this happens for the first time you need to seek urgent medical attention to rule out any other eye conditions.

Silent Migraine

People will experience the aura but do not get a headache. This is more prevalent in older people.

You may experience a throbbing headache which is on one side of your head. It becomes worse when you move and you are unable to do anything, become light and/or sound sensitive, feel nauseous and/or you may vomit.

This is defined if you have 15 or more headaches each month. Eight or more headaches should have migraine symptoms for at least 3 months. If you have fewer headaches with migraine symptoms this is known as episodic migraines.

Symptoms

  • frequent headache
  • increased sensitivity to light, sound or smells
  • nausea
  • vomiting

Other symptoms include aura (such as visual disturbances, problems with speech, numbness or pins and needles), dizziness and vertigo.

This occurs with neurological symptoms which include at least two of the following:

  • slurring of speech
  • vertigo
  • ringing in the ears (tinnitus)
  • double vision (diplopia)
  • Unsteadiness when walking as if drunk (ataxia)
  • Temporary decreased consciousness (syncope)
  • Pins and needles and /or numbness affecting both arms and/or legs
  • Changes in eyesight in both eyes such as patterns or flashing lights

The attacks are regular and take place in a time cycle of several weeks.

Symptoms

  • Regular attacks of feeling very sick and vomiting (being sick)
  • These attacks last from one hour to ten days
  • The attacks take place more than one week apart but occur regularly, usually at the same time of the day, week, or month
  • Feeling normal in between the attacks

People experience a combination of vertigo, dizziness or balance problems with other migraine symptoms.

Symptoms

Along with the headache other symptoms may appear including:

  • Nausea
  • Vomiting
  • Sensitivity to light, sound and movement

 

 

Additional migraine symptoms can include:

  • Vertigo
  • Sensitivity to smells
  • Light causing pain not just sensitivity
  • Sensitivity to touch on the head or face

This type of migraine affects children as well as some adults.

Symptoms

  • regular attacks of moderate to severe stomach pain that last from 2-72 hours
  • feeling sick and vomiting during attacks
  • no headache during attacks
  • feeling normal between attacks

People experience a temporary weakness down one side of the body as part of the migraine attack. This type of migraine can occur if it already runs in the family or if there is no known family or inherited connection. This weakness may be in addition to some common aura symptoms:

  • Changes in eyesight in both eyes, such as coloured spots, zigzags or sparkles
  • Slurring words or not being able to speak clearly
  • It can affect your ability to write and understand language which can cause problems with reading, listening, speaking and writing

People may also experience:

  • dizziness or vertigo
  • hearing problems or ringing in the ears
  • confusion

The migraine attacks are linked to the menstrual cycle. They tend to occur around 2 days before your period starts and last up to the third day of your period. The migraine attacks can begin when you start your periods and stop in menopause. You can have menstrual migraines at other times of the month. This is known as menstrually-related migraine

This results from a frequent use of acute medicines or painkillers e.g. triptans, ergotamines, opiates, non-steroidal anti-inflammatory drugs (NSAIDs) and paracetamol.

People who have primary headache disorder can develop this order e.g. migraines or a family history of migraine. It usually with a headache on 15 days or more each month. The medication itself causes more headaches and are sometimes referred to as rebound headaches.

Migraine Treatment

Treatment can help manage the symptoms of a migraine and/or prevent migraine attacks.

Treatments do vary and can include the following:

  • Taking ibuprofen and paracetamol
  • Being prescribed gepants or triptans
  • Medication to prevent nausea and/or vomiting

Take painkillers as soon as the headache starts.

There are preventative treatments which can be prescribed to prevent migraine attacks. This can include:

  • Beta blockers, antidepressants and epilepsy medications
  • Acupuncture
  • Relaxation techniques
  • Cognitive Behaviour Therapy (CBT)
  • Vitamin B2

A health professional may suggest lifestyle changes including eating regularly, keeping hydrated and reducing caffeine intake, for example.

The causes of migraine are not really known but it is when there are changes to the nerves and blood vessels in the brain.

More prone to migraines if you have a close family member with them.  

Some people find that there are certain triggers which cause migraine attacks e.g.:

  • Anxiety and depression
  • Your period
  • Stress and tiredness
  • Skipping meals or not eating regularly
  • Too much caffeine
  • Not doing enough exercise

Keeping a diary might help you to identify the trigger/s which cause migraine attacks. You also need to consider how often you have migraines, how long they last for and what the aftereffects are which impact on daily living and/or mobility:

  • Are you having occasional migraines or several migraines e.g. 1 – 4 times a month?
  • How long does the primary migraine phase last? It can be anything from 4hrs – 72 hours.
  • Do you experience a ‘migraine hangover’ which may appear after the migraine itself has subsided? (This is known medically as the postdrome phase) if so, how long do they last? Is it several hours or several days?
  • What impact does the postdrome phase have on you? Examples could be that you feel drained, fatigued, confused, physically weak etc. This may mean that you are unable to function for significant periods of time. This needs to be included in the daily living descriptors and/or mobility descriptors, where appropriate.

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Daily living descriptors

The following sections outline the daily activities assessed in PIP claims and how Crohn’s Disease may affect them. This is not an exhaustive list; ensure all relevant details are included in your application.

1. Preparing food

Migraines can impact how you prepare a simple meal in a variety of ways:

  • You are unable to stand for any length of time in the kitchen because you feel unwell due to dizziness, vertigo, sight disturbance headache etc.
  • You have to go to lie down in a dark room due to light and/or sound sensitivity.
  • You may experience smell sensitivity and need to leave the kitchen and stop any food preparation because of this.
  • Someone else prepares your food because you are unable to do so due to your migraine attack.
  • You experience auras which alerts you to the fact that you are about to experience a migraine attack and you leave the kitchen to take prevention measures to lessen the effects of the migraine.
  • Struggle to read instructions on a packet etc due to visual disturbances.
  • You are unable to prepare food or go into the kitchen to prepare food due to having nausea or you are having to go to the toilet because you are vomiting.

2. Eating and Drinking

You may experience the following when eating and drinking:

  • You may struggle to eat/drink or not eat/drink at all due to your migraine attack with the range of symptoms that you experience.
  • There may be foods that you eat which are ‘trigger foods’ and they can bring on a migraine attack which stops you from eating/drinking anything else.
  • You do not eat regularly, and this can trigger a migraine attack e.g. skipping meals.
  • You are prompted and reminded to eat/drink

3. Managing Treatments

This descriptor examines how you manage health-related treatments, and you may find:

  • You may attend self-management support groups.
  • You are under a dietitian.
  • If you take medication, may need to be prompted and reminded when to take it or you set an alarm on your phone as a reminder to take your medication.
  • A dosette box may need to be used to remind you to take your medication?
  • Do you experience any side effects from your medication?

What other health professionals are monitoring your condition e.g. GP, neurologist, pain management team etc.

4. Washing and Bathing

This looks at the ability of being able to bath or shower and what issues you may experience:

  • You may only wash and bathe when there is someone around because you do not experience any auras or warning signs that you are about to have a migraine attack.
  • You may have low mood and/or lack of motivation to wash or bathe and may need to be prompted by someone.
  • Movement of your head causes further pain
  • You might be at risk of falls in the bath or shower because of visual disturbances in your eyes, dizziness, vertigo etc. Have you fallen in the bath/shower?
  • You have aids in the bath/shower e.g. shower seat, grab rails, non-slip mat, long handled brush etc.
  • Are you able to wash your body from the waist up including your hair without any issues?

Are you able to wash your body and legs below the waist without any issues?

5. Managing Toilet needs or Incontinence

This descriptor is about the ability to use a toilet independently and to be able clean yourself afterwards and have no continence issues:

  • People who experience migraines do not usually experience continence issues.

If you experience continence issues due to your migraines, you need to explain what these are.

6. Dressing and Undressing

This looks at whether you can dress and undress yourself and choose appropriate clothing:

  • Are you prompted and reminded by someone to get dressed and/or change your clothing due to low mood/lack of motivation?

Do you experience issues if you are having a migraine attack whilst dressing undressing? Do you need to stop what you are doing? What symptoms do you experience – pain when moving your head, vision is impaired, vertigo, light/noise sensitivity etc?

7. Communicating Verbally

This descriptor looks at someone’s ability to verbally communicate and to be able to express and convey information and to be able to receive and understand information:

People experiencing migraine attacks may have issues with communication due to the symptoms they are having. If you have communication issues, then you need to state what these are.

8. Reading understanding Signs, Symbols and Words

This relates to the ability to read and understand written or printed information:

  • People having migraine attacks may have issues regarding reading and understanding signs, symbols and words because of pain, inability to focus due to visual disturbance, nausea, dizziness, vertigo etc.

9. Mixing with other people

People having migraine attacks can struggle socially and find it difficult due to:                            

  • You may struggle to mix with other people if you do not know when a migraine attack will happen because you don’t have auras.
  • You may need to have someone with you so what when a migraine attack happens, they are able to help you as you may be experiencing a range of symptoms which make you feel unwell and you may feel unsafe due to vertigo, visual disturbances etc.
  • You may avoid mixing with people because you fear a migraine attack may occur.
  • You avoid mixing with people in places where there are triggers e.g. light/noise/smell sensitivity.

10. Managing Money

This descriptor looks at if you can manage their money:

  • People who experience migraine attacks can usually manage their money and have no issues in this area. If this is not the case, then you need to explain the issues you experience.

Mobility descriptors

These evaluate how migraines may affect mobility related tasks. This is not an exhaustive list; ensure all relevant details are included in your application.

1. Planning and Following a Journeys

Migraine attacks may make planning and following a journey challenging:

  • You may struggle to plan or navigate an unfamiliar journey without support from someone else due to your condition.

2. Moving around

Moving around may be affected due to migraine attacks:

  • Walking may be difficult if you are experiencing a migraine attack as you may have symptoms which make moving around difficult e.g. vertigo, visual disturbances, pain increases with movement.

Consider are you moving around safely when experiencing a migraine attack

Finally…

It is important that when you complete your PIP form, that you include how migraines affects you in relation to each descriptor. Ensure that you give specific examples, under each descriptor, where you have struggled due your migraines. where appropriate. It is important that you include any aids, adaptations or support/supervision that you need to help you complete each activity, where appropriate.

This information only covers migraines. If you have any other health conditions and/or disability you should include how they impact you under the relevant descriptors.

Remember to include copies of any relevant medical evidence, diagnosis letters, care plans etc to support your claim for PIP.

We hope you found this guide useful.
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